National Eye Institute - Anophthalmia and Microphthalmia
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Provides support and information for parents and professionals with microphthalmia, anophthalmia, coloboma and related conditions.
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Discovering your child is born with Anophthalmia, Microphthalmia or Coloboma can be a devastating experience. The group aims to offer emotional and practical support from parents who have been through similar experiences.
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WELCOME TO THE MACS WEB SITE
The home of information about Microanophthalmia, Anophthalmia, Coloboma and related conditions. MACS offer support and information to parents and professionals in the UK and around the world. Macs also give parents, families and
Provides patient information about this rare eye disorder, including causes, treatment and additional resources.
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(Información en español)
Microphthalmia is a disorder in which one or both eyes are abnormally small. Anophthalmia is the absence of one or both eyes. These rare disorders develop during pregnancy and can be associated with other birth defects.
» Anophthalmia and Microphthalmia
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For the support group for families and individuals dealing with anophthalmia and/or microphthalmia. The site has stories, medical information and a parents support forum.
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ican, the international childrens anophthalmia network, is a family run support group for individuals with anophthalmia, micropthalmia, and coloboma, and their families.
You have just heard your baby has anophthalmia or microphthalmia (A/M). This is a difficult time. You may feel overwhelmed with grief and anger. You may instead be saying, the doctors must be wrong somehow. Or you may be rethinking every step of your pregnancy wondering what you did or did not do